Support Organisations
It is our mission at Living With Support to provide a range of resources to help you navigate living with Endometriosis, Adenomyosis or pelvic pain.
Here’s a range of support organisations across Australia, New Zealand and the world.
Australia
EndoZone is an evidence-based platform co-created with people affected by Endometriosis.
Endometriosis Australia aims to raise awareness, provide support, and advance Endometriosis research. They strive to improve understanding, ensure early diagnosis, and promote better treatment through advocacy and education.
QENDO is the peak body supporting people affected by endometriosis, adenomyosis, PCOS, infertility, and chronic pelvic pain. As Australia’s only dedicated service provider for these conditions, they have proudly led over 37 years of advocacy, education, and support.
QENDO offers a range of free programs and resources designed to empower individuals and improve quality of life – including a Helpline, nurse-led QENDOcare Telehealth Clinic, EndoAware Workplace Program, QENDO Meets peer support groups, and QENDO Mentoring. Their National Resource Guides, Symptom Tracker App-based tools, and awareness campaigns are trusted by consumers and professionals alike.
QENDO connects lived experience with expert care, helping ensure no one faces pelvic pain or reproductive health challenges alone. QENDO is committed to collaboration and creating a future where pelvic health is better understood, supported, and prioritised.
Endometriosis Western Australia
Endometriosis Western Australia will always strive for bigger and bolder ventures to improve the lives of all Western Australians affected by Endometriosis (or Adenomyosis or PCOS) and your support people.
Pelvic Pain Foundation of Australia
The Pelvic Pain Foundation of Australia is a not-for-profit organisation formed to build a healthier and more productive community by improving the quality of life of people with pelvic pain.
EndoActive’s mission is Awareness, Information and Advocacy for women, girls and people assigned female at birth with Endometriosis (Endo).
Fight ENDO is a nationally accredited non-profit organisation and charity that provides a place of aid and hope by ensuring that all women suffering with endometriosis are able to live their best lives, unrestricted by the condition.
RANZCOG has developed the Australian Living Evidence Guideline: Endometriosis; a clinical resource which provides the best available scientific evidence to assist the diagnosis and management of Endometriosis.
New Zealand
Endometriosis New Zealand is Aotearoa’s national endometriosis organisation, providing support, advocacy, research, information, education and awareness on endometriosis.
At Insight Endometriosis, they believe that everyone deserves access to accurate information and support when dealing with endometriosis. They have been empowering the endometriosis community by providing information, education, and support as well as raising awareness to reduce diagnostic delays since 1999.
Global
WES advances evidence-based standards and innovations for education, advocacy, clinical care, and research in endometriosis and adenomyosis, in collaboration with its stakeholders and global partners to improve the lives of those affected and their families.
The World Endometriosis Research Foundation (WERF)
WERF is the global charity which facilitates research into endometriosis to improve knowledge and treatment(s). WERF is working with more than 100 institutions in 35 countries.
Endometriosis.org is the global platform which links all stake holders in endometriosis – one of the most common causes of pelvic pain and infertility in women.
If you would like your support organisation listed on Living With Support’s page, please get in touch via email.